Fibro Sunday

One of the things that I think is a challenge for those of us that deal with fibro pain, is trying to figure out when that pain is from the fibro, or something a little more serious.

For a year I complained to my Rheumatologist about my right shoulder pain. She kept blowing it off as fibro, even though over the months it was increasingly getting much worse. It took almost a year before she actually believed me and then in a matter of months I had rotator cuff surgery.

Another concern I have had is that I continue to get arthritis in many more places on my body, so I questioned something more severe, perhaps rheumatoid arthritis. And she shrugs it off.

So, sometimes we have to take matters into our own hands because we do know our bodies better than anybody. Rheumatologists are a rarity around my area so I will be driving to a nearby town. He may tell me the same things too but I feel that I need a second opinion.

I strongly encouraged anyone with a health concern that is not completely confident in your current doctor to seek out a second opinion, and a third if need be.

Another thing that makes me seek out a second opinion is that everytime I read an article about a theory on fibro, she “pooh-pooh’s” it, tells me the theory is old or that there is no truth to it.

I have read several articles over the last 6 months about a possible link to a virus. I would love to talk with her about it, but I already know what she will say.

I hope you are all well and enjoying the spring!

Live well!

Fibro Sunday

Yesterday I spent part of the day with one of my dearest and most cherished friends. She is recovering from knee surgery, so we had a lot in common sharing our stories of pain medication, therapy, and overall physical pain.

And it made me realize that to those that do not have daily pain, chronic pain, you cannot understand how our lives have changed because of it. Or what we have to deal with.

For example, shopping. I love shopping! Especially in the spring when I get to plan and shop for my flowers, planters and garden. But it’s exhausting and painful. Getting in and out of the car can be tiresome but it can also hurt. All the walking hurts me, but I push on as much as I can. I usually have to ask for help with large bags of potting soil, fertilizer, etc. There have been days where I had to break the shopping up in two parts, coming home for a break and going back either later in the day or the next day.  Don’t even get me started on shopping for clothes, OMG!  What female doesn’t like shopping for clothes but I tell ya, getting undressed and dressed again can be a little hurtful.

Cleaning can be a challenge as well. When I hear someone say that they can get their house cleaned in a short amount of time, I kinda want to smack them! But I am also envious. I do a little cleaning and then have to sit for a short period of time. Possibly use the heating pad. But I can tell you this, having a spotless house isn’t as important as it used to be!!

Yard work, I always loved being in my yard and gardens but I have to pace myself and be careful how I move and how much work I allow myself to do at one time.  Pain meds are always involved.

Waking to an alarm and going to work, I know we all struggle with that! But seriously, when you hurt as bad as we do, getting up and moving first thing in the morning is not that easy. I have to work to support myself, so I do my best to work through the pain, or the stiffness, or the exhaustion as best I can just so I am out the door in time. And when I sit in my chair at my desk… WOW the pain sets in my back or hips like crazy. And I have to wonder, is it really worth it?

Taking a shower. Yes you read that correctly. Sometimes the water hitting our skin hurts. It can also be exhausting trying to get a shower done in a reasonable amount of time, all that moving. There have been times where I am using a back brush, it is like rubbing nails across my skin. There have been times when just shampooing my hair not only hurt but used all my energy. Most of the time the water cascading over me is very refreshing and comforting but there are times when it is not.

Weather. I know there are a lot of folks that can feel the weather changes coming with their arthritis pain. This is a little bit more! In fact, I can tell you that some days, I have sat at my desk with my head in my hands crying from the pain, willing it away, waiting for the pain med to kick in and just trying to breathe and not stress too much but the crying is a dead giveaway that I AM stressing!! I sometimes calm myself with a cup of chai while the med does its job. 🙂

Exercise. I once went to the gym, and often; at least 3-5 times a week. I am lucky if I can get myself to our fitness center and swim just once a week, I do try, and I do feel good while in the water. But trying to convince myself while I am IN pain, that I should be in the pool, well lets just say the conversation in my head is not pretty!! I try to walk too, but the pain in my feet is terrible, I have orthotics which does help but if you have never had pain in your feet you cannot understand walking like that! I am lucky to get a 30 minute casual walk in, my good walks of doing a hearty fast paced sweaty walk is over! I feel like I am giving myself heart disease by not moving, which is what both my parents passed from. I feel doomed.

Our weight, ugh. Because of everything I just told you, we then put on weight because we can’t move much and it is very depressing. And just makes us feel even more horrible about ourselves.

So when someone says they are hurting but they look fine, believe me, we do hurt and the struggle is real for us. Don’t judge us, just try to understand.

The sun is shining and it is just a tad warmer today so I am going for a walk. Then I need to run an errand and head for food for the week. You all have a great day!